My Story
I’ve faced a lot in life, but one thing I’ve learned is to always smile, no matter what happens. My family has been my biggest source of support and love, and I owe so much to them. They’ve taught me to focus on the future and let go of what’s in the past. My experiences—from school days to hospital visits—have shaped who I am today, and I’m here to share those moments with you.
Welcome to My World!
Hi, I’m Ali, and I’m so glad you’re here. This space is a reflection of my journey, my passions, and the lessons I’ve learned along the way. Life has thrown its fair share of challenges my way, but I’ve found strength in staying positive and embracing what’s to come. Here’s a little about me and what drives this project.
Why This Blog?
This blog is my way of helping others. Living with Duchenne muscular dystrophy has taught me the importance of connection, understanding, and support. I hope to make this a place where:
People
People with similar experiences can find comfort and inspiration.
Family
Families and friends can learn more about the condition.
Help
Anyone struggling can feel less alone and more understood.
Through humour, stories, and reflections, I want to create a safe and gentle space where everyone feels welcome.
My Vision
I dream of building something bigger—a fund that helps people in need. Whether it’s fixing equipment, supporting fundraising, or just making life a bit easier for someone, I want to give back. This blog is just the beginning. I’m also thinking about creating a Duchenne’s Discord group, a safe space where people of any age can share their experiences without judgment.
What Brings Me Joy?
I love anime, music, and the little moments that make life special. You’ll often find me scrolling through TikTok, watching funny videos, or chatting with friends late into the night. Life’s too short not to find joy wherever you can.
My Promise to You
This blog isn’t about perfection—it’s about being real. Whether it’s joy, grief, or humour, I’ll share it all with you. My hope is that through my stories, I can inspire, support, and connect with others. Together, we can create a community that lifts each other up.